You're not alone
Living with Ormond's disease can be challenging. There are good days, but also days when strength, patience and confidence are put to the test.
Every step you take deserves recognition. Even on days when things are not going so well, you are not doing anything wrong. No one always has to be strong. Allowing yourself a break, accepting help or simply coming to rest is just as much a part of life.
Never forget that you are more than your illness.
Let's support each other, give each other courage and be there for each other. Together we can give hope and show that no one has to go this way alone.
A personal word from me
As someone who knows how much Ormond's disease can change life, one thing is particularly close to my heart: don't give up hope.
Sometimes it’s the little things that give us new strength – a good conversation, an understanding person, a beautiful moment, or just the feeling of not being alone.
This homepage should therefore not only inform. It is intended to bring people together, give courage and show those affected that there are others who understand their way.
I wish all those affected from the bottom of my heart much strength, confidence and an improvement soon.
We can do it – together.